Genetic Counselling – Our experience so far

We travelled to Guys and St Thomas hospital in London. We drove as a train journey with Violet would be a nightmare for numerous reasons.  We were met by a lovely geneticist who ushered us into a consulting room. We chatted about Violets birth, both our families medical histories and Violets development and struggles so … Continue reading Genetic Counselling – Our experience so far

Onslaught of services

We were bombarded with appointments. Dietician, Paediatrician, Physiotherapy every week at the clinic, then Speech and Language and Occupational Therapy, Genetic counselling at Guys in London, all within a very short space of time. We went from near enough nothing to what seemed like everything overnight. My head swam with appointment dates, so much information, … Continue reading Onslaught of services