Let's start afresh! I'll be honest, I lost my blogging mojo. We've kept Violets FB and Instagram page going but posts are generally small. I feel it's time to get back on track with sharing our journey in a more meaningful way. Through more detailed posts and giving a clearer insight into our struggles, adventures … Continue reading It’s been a while
Early on I was reluctant and ashamed to ask for help. But my hand was forced. I had amazing help from my family and best friend in the early days when Violet would scream for 12hrs a day and I physically couldn't care for Henry too. As our journey has progressed I have accepted and … Continue reading A plea for help
After talking to a good friend of mine, a fellow SEN mum it dawned on me how I had been in the "in between" all this time. No wonder I felt so isolated. Our "in between" consists of living life as a Mum to an ordinary child and a extraordinary child. Where the groups designed … Continue reading Somewhere in between
Epilepsy, you are evil. I hate you. If I could hunt you down, I would. Our sweet girl doesn't deserve to suffer at your hands. Yet you repeatedly have her in your clutches. Dread fills us at the first sign of sniffles or raised temperature as this signals an inevitable visit from you. You have … Continue reading Epilepsy you are evil
I’m a mummy on the edge. The last few weeks have been a haze of hospital visits and admissions. Our already hectic and unforgiving schedule was blown out of the water. It’s been a steep learning curve once again. I’ve had to face and battle more demons, witness things that I haven’t even begun to … Continue reading Relentless
