Let's start afresh! I'll be honest, I lost my blogging mojo. We've kept Violets FB and Instagram page going but posts are generally small. I feel it's time to get back on track with sharing our journey in a more meaningful way. Through more detailed posts and giving a clearer insight into our struggles, adventures … Continue reading It’s been a while
Epilepsy, you are evil. I hate you. If I could hunt you down, I would. Our sweet girl doesn't deserve to suffer at your hands. Yet you repeatedly have her in your clutches. Dread fills us at the first sign of sniffles or raised temperature as this signals an inevitable visit from you. You have … Continue reading Epilepsy you are evil
Reeling from the consultants words, I had made a complaint about numerous issues we had faced. This resulted in things happening quickly. Violet had a blood test to check for the metabolic disorders and genetic conditions. We got an assessment date with the Physiotherapy team and we were now under the care of the head … Continue reading A painful start to a long road
