Let's start afresh! I'll be honest, I lost my blogging mojo. We've kept Violets FB and Instagram page going but posts are generally small. I feel it's time to get back on track with sharing our journey in a more meaningful way. Through more detailed posts and giving a clearer insight into our struggles, adventures … Continue reading It’s been a while
Tag: #dystonia
A plea for help
Early on I was reluctant and ashamed to ask for help. But my hand was forced. I had amazing help from my family and best friend in the early days when Violet would scream for 12hrs a day and I physically couldn't care for Henry too. As our journey has progressed I have accepted and … Continue reading A plea for help
Epilepsy you are evil
Epilepsy, you are evil. I hate you. If I could hunt you down, I would. Our sweet girl doesn't deserve to suffer at your hands. Yet you repeatedly have her in your clutches. Dread fills us at the first sign of sniffles or raised temperature as this signals an inevitable visit from you. You have … Continue reading Epilepsy you are evil
Leftie
A naughty little left arm and hands adventures. Flinging themselves around, doing all kinds of dance moves. The life and soul of the party. Always ready to get involved in the action. Whether that's poking eyes, scattering toys as far as the eye can see or causing general chaos and mayhem. Amused by knocking the … Continue reading Leftie
Relentless
I’m a mummy on the edge. The last few weeks have been a haze of hospital visits and admissions. Our already hectic and unforgiving schedule was blown out of the water. It’s been a steep learning curve once again. I’ve had to face and battle more demons, witness things that I haven’t even begun to … Continue reading Relentless